Friday, April 30, 2021

Just some pictures

 Avery did so well at her nasal scope. I was so proud of her! She was very hesitant at first and we kept threatening to leave the room and make her do it by herself. I told her she could get any toy she wanted if she would just sit for the scope. She repeated every word they told her to so they could see how her palate moves. It turns out that they don’t think the fistula is the problem. They believe her palate is too short. We scheduled surgery June 29. I am so nervous for the recovery. They are going to take tissue for inside her cheeks, open up between her hard and soft palate and then insert the tissue. This will eventually push the soft palate back and elongate it. 

We hope you had a good Easter! 

Here are some pics 


Cheese!


We went to see the Tom & Jerry movie! 

Not sure if this was posted but here is my school pic! Lol 


Finding Easter eggs 


Happy St Patrick’s Day!


Happy Easter!


Buddy! And his huge neck



More pics from the mall 


That is the inside of my nose/throat!


Reagan wearing her new headphones


Mommy loves matching jammies 


Joe loves Reagan

Finding more eggs!


At the movies 


Bubbles 


Gathering pine cones around the yard 


Reagan looks so cool in her double sunglasses 


And so cute in Mommy’s glasses 


Coloring Easter eggs


This is how Joe eats. He is so lazy lol 


Dandelions 


We took a trip out to Toledo to see the cousins


Fun on Easter 


Opening the eggs we found


More bubbles 




This is what I picked after my nasal scope.. the Barbie camper!!


Swinging with Reagan 

Monday, March 1, 2021

Nasal Scope

 We scheduled Avery’s nasal scope for March 18. She needs to be awake for it so the surgeon can see how her palate moves when she talks. I am NOT looking forward to this because it is going to be so uncomfortable for Avery. She needs to have this done before her cleft palate surgery though. I don’t want to have this surgery done (because it’s going to be horrible) but it’s going to be necessary. The last time Avery had cleft a palate surgery she had 50 stitches in her mouth and we were lucky to have a gtube because she wouldn’t take anything by mouth for over two weeks. This time we are hoping to keep up with her pain meds and she will do ok. I know it’s going to be horrible but we need to do it in order for her to eventually have a normal life. I know this surgery is going to be horrible but it’s also going to be life changing for her. She will eventually be able to make the correct sounds, talk ‘normally’ and be able to eat cake without sneezing and it coming outside of her nose. I know it’s going to be a difficult few weeks but it’s going to be eventually be awesome for her. I just wish it was over already. 

Saturday, February 20, 2021

Snow Fun

We don’t have much to do with it being quarantine and the pandemic so we played outside in the snow. If anyone knows me, you know I hate being cold but it actually wasn’t bad today. We painted snow. We took dollar store washable tempura paint and mixed it with a little water. We then put it in a squeeze bottle (you could use a spray bottle too) and then decorated the snow. At one point Tim buried Reagan in the snow and she loved it. 

Daddy brought this huge icicle into the house!


















Just chilling 



Saturday, February 6, 2021

Gymnastics

 We signed Avery up for gymnastics lessons but it didn't last very long. We thought this class would be a good fit for her because there were only 7 other girls, ages 6-10 and one of the girls was smaller than her. Tim took her and she refused to go on the mat. Same thing happened the next week. She refused to go the third week. I'm sad she didn't want to participate because I think she would have liked it and would have done really well. Not much has gone on this past month. Just a few pics...


This is a really good explanation :) I love this 



Reagan loves her snapchat filters


                                                   

                                                  

                                                  


Reagan and Buddy :)


I made it over 40lbs! Only took 8 years... I am 41.6lbs!



Reagan hears me talk so much about gymnastics that she isn't interested at all..lol


Reagan said this is a pic of her and me in our beds and we both have teeth to give to the tooth fairy. The person on the left is the Tooth Fairy and the pink thing is a light so the tooth fairy can see in the room :)




Reagan colored this pic and said the shell looks like a whoopie cushion!?!? Mommy and Daddy have never talked about whoopie cushions before. Reagan is super smart.lol. 



Medes and Buddy love to snuggle


Mommy got her first vaccine and gets her next on Feb 15.





Joe is so cute Look at that tongue!


Look at me in my new leotard!!! Too bad I didn't like gymnastics :(