Friday, December 11, 2015

First Movie, Thanksgiving and a Trip to the ER

Sorry it's been so long since I posted. We hope you all had a wonderful Thanksgiving! We got to spend ours with both sides of the family and it was great seeing and spending time with everyone.

Avery saw her first movie in a theater last week. We ended up going to see The Good Dinosaur. She was a bit scared during the first few minutes because its a huge screen and louder than she is used to but she ended up relaxing and enjoying it. She kept saying "uh oh" really loud throughout the movie and managed to burp during a part it was really quiet.  Last week Avery’s cousins, Kaitlin and Eddie slept over. They had fun decorating cookies, playing hide and seek and reading books but when it was time to go to bed, Avery started screaming in pain. She was up ALL night. The poor kids had trouble sleeping because of Avery. I felt horrible but I had to call my sister to pick up the kids around 7:30am  so we could take Avery to the ER. Right after my sister left, Avery fell asleep from 8-11. When she woke up she started screaming again so we took her to Fairview because we didn’t know what was wrong.
 
They probably thought we were crazy because when we brought Avery in, she was sleeping and calm and looking like nothing was wrong with her even though we told them she was screaming in pain a little while earlier. They ended up doing an ultrasound of her abdomen to make sure there wasn’t anything wrong with her stomach. She was so good and just laid there the whole time. She also had a urine culture..I was nervous about the catheter because one time last year they had trouble getting it in and she screamed and screamed. This time they brought in a Child Life specialist who helps the child calm down during procedures and helps them feel comfortable when they are in the hospital. They just make things less scary for the kids. This Child Life Specialist went and got an ipad and played an episode of Mickey Mouse Clubhouse while the nurse inserted the catheter. Avery cried for a minute but that was pretty much it. Its amazing how good she was when we were there. Both the ultrasound and urine were normal. A urine culture was sent and that came back normal the next day. They couldn’t find anything wrong with her except possibly her teeth/mouth. They ended up giving her motrin and an antibiotic in case she had an infection in her mouth. It was crazy when the doctor told Avery to open her mouth and she opened it right up. She did not do that for us or for the dentist.
 
I ended up calling the dentist's office and there was an opening for her procedure on Friday, Dec 11. I said we would take it because I was scared Avery's teeth were causing her all of these issues. The scheduler said the dentist would call me on Tuesday with instructions. Monday night, Avery developed a fever of 100.5 and a cough.  We kept Avery home from school and daycare on Tuesday and Wednesday. I hadn't heard from the dentist on Tuesday so on Wednesday I called the office and was told Avery wasn't even on the schedule. I said well I have an email saying she was going to be. I then told the scheduler that she was on antibiotics and had a cough and fever. The scheduler said I would have to call back two weeks after she finished the antibiotics and had no fever. I asked if I could just schedule something now for a few weeks out and she said no. I then asked if I could leave a message for the dentist and she said that no, because the dentist would just end up having her, the scheduler, call me. We were both getting upset with each other so I asked to speak to someone else and she said someone would call me within the hour. No one ever called me.
 
On Thursday the dentist called me to apologize for what happened with the scheduler and appointment. We discussed Avery's symptoms and she said she was worried about the cough/congestion because anesthesia won't operate. They usually don't operate if a patient has a fever either. She said she was going to check her schedule and try to get us in on Dec 18. I am supposed to call her towards the beginning of next week to update her on Avery's current health.  She also said that Avery's teeth are really bad and she would most likely need many of her teeth extracted. I asked if they put anything there like a spacer or fake tooth and she said no. I am worried if Avery needs a lot of teeth pulled that she won't be able to eat. I read an article about a 4 year old who had 20 teeth and went into surgery and they pulled 16 of them. I am very worried that this is how its going to be with Avery and that she wont have any teeth until she starts getting her adult teeth. I am praying they will be able to cap some of them instead of pulling them.
 
Today Avery is still sick. She FINALLY got rid of the fever but has a bad cough. We took her in to the pediatrician's office and they listened to her breathing and she got a chest xray. Luckily the xray looked good. They decided to prescribe her a different antibiotic..augmentin. I am NOT excited about this because this prescription is actually marked in Avery's medical chart as her being allergic to it. She isn't necessarily allergic to it but it does give her horrible diarrhea and diaper rash. They advised us to have her start taking probiotics first and also put Vaseline on her butt to help prevent the diaper rash from starting.





Putting ornaments on my tree that decorated my room when I was in the nicu


Do you want to help me decorate the tree?

This is what I made Daddy for his birthday...It says "I Love U". If you only knew how many pictures Mommy had to take to get this finished.

Decorating cookies with Grandma B

When I sit on the potty, I get a sticker. I still won't sit on the potty with out my pants/diaper on.

Now, if you are nice Makinsley and Kassidy, Grandma S will give you a cookie!


Do you see Cameron? He's a trouble maker, pulling my hair! Having fun with Kaitlin, Cameron, Luke and Eddie!

Kaitlin and I were playing hide and seek with Eddie

I have so much fun with my cousins.  Mommy loves this picture of me because I am actually smiling

Ewww stinky feet

So, you are saying these aren't stickers??

We made homemade bath paints!
 
 
How do you like my school pictures? lol  I had a black bow in my hair that's hanging down and no one bothered to fix it for me..not to mention that I look like I hate the world


Excited for my first movie!

 
Family photo

Making cookies

Eating Cookies!

 
Just a typical Saturday night, riding on Chewie

Sliding down the stairs on our butts

 
Kaitlin was reading me a story


And here we are in the hospital. I was not feeling good

Mommy and Daddy, I don't feel good

Being good while they performed my ultrasound


Giving Medes hugs

 
Giving Mommy hugs


Taking naps with Lilly. She is on top of my house and I am in my bed

 
 
 
 
 
 
 
 
 
 

Thursday, November 19, 2015

Another Surgery :-( (this will make #6)

Avery went and saw the dentist today. I was dreading this appointment. We all know her teeth are HORRIBLE so I guess we kind of expected this. We went to the dentist around 9 months ago and her teeth were just beginning to chip. The dentist thought it may have been from her grinding them because she grinds them so much at night. We saw the dentist today and they think its partly due to prematurity (because many preemies have bad teeth) but mostly due to the Pediasure that she drinks everyday to help her gain weight. Its basically a double edged sword. Either we give her the pediasure and her teeth rot and chip or we don't give it to her and she won't maintain her weight.

The dentist said that Avery needs to have every tooth crowned. She would be fully put to sleep and it would take a few hours. Once she is asleep, they would take some xrays and review them. They would then decide if any of the teeth need to be extracted or if they could just be crowned. They said the teeth in the back will get stainless crowns so Avery is going to have some bling in her mouth!

Once I get her records and history form sent over to them, we will schedule the surgery. I guess its more of a procedure but I am still really nervous about it because she will be put under. I always get scared when anesthesia is involved with her.

We are going to a fundraiser for Avery's preschool, Pleasantview, on Saturday. If anyone is bored, feel free it attend. Its at Harry Buffalo in Parma Heights from 6-9. Each ticket is $25 but you get unlimited draft beer, well drinks and food for a few hours. There will also be baskets and raffles.

This weekend is Tim's birthday. I am excited to show you what Avery made for him but I am going to wait until my next update.



I don't know why but I am obessed with my feet. I will take my shoes and socks off in the car to look at my feet

I smile..but only when I want to (see school picture down below..lol)

Good thing Mommy was paying attention because I jumped into her arms

I love my bunny and playing around before bed



I accidentally ran my head into the fridge and mommy told me to put this garlic bread on my bump..lol

Here is my daycare picture. Don't I look thrilled? I cant wait to see my preschool picture
Here was my first ever daycare picture..Hilarious..they lost my socks that day so I am not wearing any in the pic event though it was in November!


Here I am at Friends Thanksgiving with Kaitlin

I was really crabby that night and ended up passing out while everyone was having fun


See, look at everyone having fun!

I may have gotten more chili on my face than in my mouth

Just sittin on a fish

How cute are Aria and I holding hands?!?!


Where did Santa go??

Mommy ran outside to let the chickens out and I decided it was a good time to decorate the toilet

Our chickens finally laid an egg!! Tim's brother also commented that it looks like I am trying to lay an egg in this picture :)
They now have laid eggs 6 days in a row!

Decorating cupcakes

Chewie is hoping I will drop some cupcakes


It is SOOOO busy at Avery's dentist at UH that they push a cart around with activities and toys that the kids can play with and take home. 

Look at me and my new toothbrush!

I made this at daycare :)
Happy Thanksgiving!