What is wrong with us?

So it finally happened..I knew this day would come..we lost one of Avery's hearing aids! We went to Giant Eagle to do some grocery shopping and came home around 9pm and started getting Avery ready for bed. We took out her one hearing aid and went to take out her other one and it was gone! We shook out her clothes, we checked the car, nothing. While shopping we went up and down every aisle of that store. There was no way we were going to be able to find it. Avery was tired so I stayed home with her and Tim went up there to look. He came home empty handed. I kept thinking how we would have to pay $300 for the first one we lose and then after that it is full price. I told Tim I had to go up and look. When I pulled into the parking lot, I was praying I wasn't running it over with my car. On my walk towards the store I looked in the parking lot and didn't see it. I looked on the ground when I got in the store by the carts and I couldn't believe my eyes, there it was! I was so happy we found it.

So not only did we lose her hearing aid but we were a no show to her hearing aid appointment. Out of the 100's of appointments Avery has had, we have never been a no show! I felt so irresponsible. I just completely forgot about it. I still have to reschedule it. We just want to make sure everything is going well with her hearing aids.

Not much else to update so I will let Avery take it away describing her pictures.

 Taking baths is one of my favorite things to do!

I have this cheesy smile the whole time I am in the bathtub!

When I get out of the tub, I am not so happy. I do get wrapped up like a burrito though!

In this picture you can see how horrible my teeth are. It is supposedly just from grinding them. You can also see the fistula(the hole that looks like someone took a box cutter and sliced) in my mouth. I will be having surgery this summer to correct that. You can also see my pretty blue eyes and possibly a booger if you look close enough.

In this picture I am 16 pounds soaking wet, literally.

Here, have some oreo pudding

The oreo pudding is so good that my forehead and hair wanted to taste it

 Ta Da!!!

I liked making the monkey and dog jump in the water.

Lunch fun with Mommy! I would rather play around with her than eat my food

Daddy and I in da house!

I love this yogurt so much that I decided to put some in my hair for later.

I sometimes like to wake up and press the button to light up the aquarium in my crib and play lullabies 

My hair is getting so long!

I thought it would be fun to make mommy chase me at the grocery store. She didn't think it was so fun

Yes, I sometimes walk around the house with this plastic box on my head. That doesn't make me weird, does it?

Daddy got rid of his baby. No, not me! His 2004 Aztec. This car has been with him through the best of times and the worst of times

Lily decided my chair was a great place to sit. It is pretty comfy if I do say so myself.

Mommy kisses

 I love looking at myself when I brush my teeth. Don't look at my horrible hair in this picture, though!

Making faces

Who is that gorgeous girl?

More bath time fun!

LOL, I act like I am smelling my feet and then make an "Ewww" face. I do the same thing when smelling daddy and mommy's feet

Here is one of my best friends, Chewie

Here is my other best friend, Daddy

Mmm Fruit by the Foot. Fruit snacks is one of my daily staples

This is how I show Mommy and Daddy I love them. I point my finger. They tell me they love me and then I point like I am saying right back at 'cha. Mommy says even though I can't talk that when she tells me "I love you" and i point back that it melts her heart.

I love you guys and thanks for following me!

A New Year and a New Word

We had a good New Year's. We ended up having my sister, her husband, their kids and a few friends over for New Year's Eve. It was low key but we all had a good time. We used to have a huge New Year's Eve party every year before Avery was born and haven't had one since until now. On New Year's Eve two years ago, Avery was transferred from Hillcrest nicu to Main Campus so she could have her G-tube surgery. Last year, Avery was sick around Christmas so for New Year's we were still trying to isolate her from germs.

There hasn't been much happening with Avery lately but that can be a good thing.  I am going to try not to jinx it. She has been babbling a lot more. We took a video of her talking to the cat in our bedroom and when she got to the closed door, she knocks on it and we swear she says "open". Let me know what you think! Be sure your volume is up on your computer.

 I am pretty talented and can do a cool trick where I drink and the liquid comes right out of my nose. This is why Mommy and Daddy are most likely going to decide to have the fistula sutured closed in the summer. It can't be good to always have a hole in the roof of my mouth.

At Cleveland Clinic we have an Intranet in which all the Caregivers can see what is happening in the company. There is a section called Our People in which they interview a Caregiver. I received an email a few weeks ago saying I was nominated. I asked who nominated me and they said normally they keep it anonymous but that this was a special nomination. She said Toby Cosgrove, Cleveland Clinic's CEO, mentioned me by name. I emailed him a few weeks back just thanking him for our awesome healthcare benefits. I told him that we really appreciate it and that if it wasn't for the great benefits, we could be bankrupt because of all of Avery's issues. Here is the article that they published on the Intranet.

I passed cards out for the game that the adults played on NYE.  I hope my physical therapist isn't looking at this pic because I am sitting in the "W" position which isn't allowed!

Mommy, when is One Direction going to be on?

Kaitlin is one of my best buddies!

See I told you. We are hanging out again and she is helping to feed me

These hats are stupid

Check out the new flash Mommy got for her camera!

I didn't bother doing my hair today, in case you couldn't tell.

Man, Mommy and Daddy are slave drivers..

Hanging out with my cousins. I love them even though I don't look thrilled in this picture. I was running around and Mommy put me in the chair for the picture and I was not happy about it.

Mmmmm Doritos. 

Don't let the size of this plate fool you. I only ate like 5 bites of garlic mashed potatoes.

Eating at my new table. Be sure to check out my shoe selection for the day. I brought these to Mommy and I wanted her to put them on me. Nothing classier than socks with sandals. 

Aren't there child labor laws around here??

Mommy showed me this picture of Scarlett sleeping on my bean bag chair after I went to bed one day. I am not happy about that, Scarlett!

See Scarlett, what goes around comes around

I am so popular that I have an audience when I eat.

Lily Tickle Tail. She is a good cat and puts up with me.

Packing up all of Mommy's toothpaste that she is donating to the group Kisses from Heaven.

 (https://www.facebook.com/kfromh)

I brought this into the bathroom, climbed in and wanted Mommy to push me around. This is the size of a shoe box

New car shopping. Yep, I think this is roomy enough for me

This is Auntie L's son, Chuck, and her new grandson Greyson!

How am I supposed to smile with that thing next to me? He is pretty cute though!