Sunday, December 14, 2014

Tubeless!

So guess what, Avery is tubeless! I came home from work the other day and I sat on the couch and I looked over at the coffee table and Avery's Gtube was sitting there! We talked to Avery's babysitter, Auntie L (our friend Chucks mom) and she said Avery picked it up off the floor and handed it to her. She didn't really know what it was so she put it on the table. I feel so bad for her because she feels so bad. I told her it was mine and Tim's fault because Tim told me the other day to check and see how much water was in the balloon. The balloon is what keeps the gtube in place and helps it not fall out.Well, needless to say I should have checked.

We ended up not putting the tube back in for a few reasons:
1. We might not have realized it fell out in time. The hole closes up pretty quickly, within an hour or two so if it falls out, you have to go to the hospital pretty quickly.
2. Even if we would have realized it in time, we did not have a new backup gtube. You aren't supposed to put an old one back in. I swear I had a backup but I looked in Avery's closet and I had three empty gtube boxes. A lot of good that was going to do
3. Avery doesn't even use it anymore. We were only keeping it in because she will most likely have surgery in the summer to close the fistula in her mouth. When she had her cleft palate repair, she wouldn't eat anything by mouth for two weeks so we are hoping that won't be the case this time around.

Avery had her first trip to the dentist this past week. I know most kids don't go to the dentist at 2 but her front teeth are notched so we wanted to make sure everything is ok. She also seems to be missing teeth. I told the dentist that it is going to be impossible to see in avery's mouth because she never lets us look in there. Tim and the dentist sat in chairs facing each other and a board was placed on their knees. Avery was placed on the board and her head was near the dentist and her feet near tim. They brushed her teeth and counted and examined them. At the end of the "cleaning" they brushed on some flouride paste. After the exam, the dentist explained how everything went. He said it seems like Avery is missing teeth at the moment. He said most kids by the age of two have 10 teeth on the top and 10 on the bottom. I think she might be missing 4 teeth. He said there is nothing to do about it now but wait.

Her two front teeth seem to be notched due to grinding them. He said it doesn't look like decay but it almost looks fractured instead. He said when she is a little older he could fix/reform them to make them look better but she would need to be put to sleep to do it. Tim asked if any of her nerves are exposed because her teeth are so notched and he said no, that we would definitely be able to tell if the nerves would exposed because she would probably always be screaming/crying because it would be so uncomfortable.

Avery is getting her hearing aids this week! I am so excited for her. I will post an update after her hearing aid appointment.

I'm am going to hold this bowl here for five minutes hoping to get one drop of water even though I am sitting in a whole tub of water that I could use to fill my bowl.

I love tub time!


Once the cats are fed their dinner (and then the dogs clean the plates), I collect them and hand them to Mommy. The other day when the cats and dogs were finished, I brought them to Mommy in the bathroom.

Why am I wearing a coat and hat inside?

My hair looks as red as the pizza sauce in this picture

This is my new flovent inhaler. I use this instead of the nebulizer with pulmicort. I'm not really a fan. The facemask makes me feel like Darth Vader.

Don't cut your finger open with the ornament hook, don't cut your finger open with the ornament hook.

Lily, you don't belong in there!


 Since I am not around kids anymore, cats now have an influence on me.

Mommy liked this picture for some reason. Personally, I think it looks like I am pooping.


Ain't nothing to see here. Just reading a book upside down.


Everyone says I look just like Mommy. Mommy says I can go in to work for her tomorrow!


Lily, when I grow up, I want to be a door dasher, just like you.

Mommy thought it would be a great idea to get a cookie card at Giant Eagle so I can get a free cookie every time we go shopping. Then mommy realized it wasn't such a good idea because she had to spend $2 on wipes because I was a mess!

Playing with my cousins. They build things and I destroy them

What the....MOM!! we don't need anymore toothpaste!

My two favorites..bathtime and Daddy!

 Daddy's distant cousin is a professional skateboarder and mommy found this for sale online. It is now hung on a wall in my room!

Daddy, it's crooked. 

Look, I have two bellybuttons! This was about an hour after my tube fell out.

Here is my tube. The balloon at the bottom should be filled with 5ml of water and that is why it fell out

At the dentist. Don't let this picture fool you. Daddy wasn't holding my hand..he was holding my arms down because I did NOT want to be there. The dentist said I was a really good patient though!

Mommy was off of work the day of her work Christmas lunch so we decided to stop up and see everyone. Needless to say, I didn't see much of anyone because I hid my head on mommy's shoulder for a half hour when we first got there.

I climbed up here all by myself. I am so proud! 

So my friend Aria and I went out to eat breakfast the other day.

and when I say eat breakfast, i really mean eat butter. All I ate was butter! Mommy even bought me a kid's meal with a pancake, sausage and home fries and all I wanted was butter packets.

Look what I have done with the place. I started decorating my house. That snowman was on the tv stand in the living room but I think it looks much better in my place.

Mommy said my hole is looking good. She also said she never imagined in a million years that she would say that statement.




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