We got to go to our favorite place on January 22…Infant Nutrition at Children’s Hospital, Shaker campus. We hated going there for the feeding clinic. Luckily, this appointment wasn’t bad. The reason we were going there is because the doctor wants to get Avery off of formula and on Pediasure. The dietician measured and weighed Avery (still a peanut at 25.5 inches and 14 pounds 2 oz) and then we discussed what she was eating. She said it should be easy to switch over to Pediasure since we were already mixing her formula to 30 calories and Pediasure is also 30 calories. Some babies’ stomachs can’t handle the 30 calories because it is too harsh. She was going to contact Dr Peterson to write a script and get it sent to a medical supply company. It looks like BCMH will be covering the Pediasure which is great news because each bottle is $2 and she was going to go through about 4 bottles/day. If she is on Pediasure for a year, we will end up saving about $2880 by getting it through BCMH. The plan was to start mixing half formula and half Pediasure and slowly adding more and more Pediasure and less formula. We are on straight Pediasure now and she is doing fine.
Avery had an ENT appointment scheduled for January 23 but it was cold out so we rescheduled it to today, January 28. I ended up rescheduling it again since the wind chill was supposed to be -20 degrees. We rescheduled the appointment for the end of February. Avery has a Help Me Grow appointment tomorrow. We need to tell them we have been referred for speech services now so we will have to start scheduling those appointments.
The reason I put the organ donor picture up below is because my friend Amber, whom I went to Ohio University with, has a baby who is currently on the organ donor recipient list. He was born with biliary atresia and needs a liver transplant. You could read more about biliary atresia here. http://digestive.niddk.nih.gov/ddiseases/pubs/atresia/
Her baby was born 5 weeks early. For awhile I thought Avery and her son, Elias, were having competitions to see who would scare their moms the most since they have both in the the hospital multiple times, see specialists, etc. Currently, I am sad to say that Elias is winning. They live in Columbus and last week had to be taken by helicopter to Pittsburgh to get testing and be prepared for the transplant. Now they are going through the longest wait, waiting for the call that will change their son's life.
Hi everyone! I have to wear a bib pretty much all the time now because my favorite thing to do is drool!
Say Cheese!
I was eating a cookie and decided to smear it all over the oven.
Sleeping on Daddy
I love putting things in this little compartment on my table. I put my Little People in there and even my socks.
While looking at this book, I always try to kiss myself in the mirror
I like to sit on Daddy's shoulders
Thanks Nichole for giving this toy to me!
No comments:
Post a Comment