Thursday, December 5, 2013

Night 3 at the Hospital

Avery seemed to have an okay day today. They kept everything the same and still had her sedated. She has been having some Bradys (where her heart rate drops below 80 beats per minute) because of the precedex. They said its completely normal and nothing to be concerned about. Avery always brings her heart rate up by herself and never has to be stimulated. They know she isn't having heart problems, that its just due to the sedative. 

I'm not really of fan of being at main campus. I feel like no one tells us anything. I have finally learned that Avery's chest X-ray showed that she had no pneumonia but it did show a thickening in the bronchial walls which is consistent with bronciolitis. I also found out that her respiratory virus panel came back negative for all respiratory viruses (flu, rsv, etc) but was positive for rhinovirus which is basically a normal URI(upper respiratory infection) that kids and adults get. 

Today Avery seemed much more alert even with the sedative. We were holding her and she was looking all around the room and studying her christmas stocking that we hung on her wall. She also flipped over(even while being attached to a bunch of cords and cannula) and as I was trying to adjust her, she crawled to the top of her crib. Just now as I am typing this blog she started causing a commotion and I went to see what was the matter and she somehow managed to get all the way to the bottom of her crib. She was mad because all of her wires were pulling and they didn't have enough slack. I am hoping this means we have seen the worst of this illness and that she is starting to feel better. Hopefully tomorrow they will lower her oxygen settings, maybe switch to a regular cannula and get our poor girl something to eat. She hasn't had formula   in almost two days. The only thing that has been in her belly is Motrin, Tylenol, vitamin d and some water to flush her gtube. 

I am spending the night at the hospital and Tim is hopefully going to get a good nights sleep at home. He worked today and works tomorrow and was with Avery all last night. 

Here are a few pics from today..

We got to hold Avery today but its a little bit of a pain because of all her wires. I guess we have experience dealing with a bunch of wires from when she was in the Nicu.


The elf visited Avery today 

St Nick came a day early and brought Avery a stuffed animal from one of her favorite tv shows.. Bubble Guppies. 

Daddy and Avery 

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